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The Best Christmas Ever!

1/8/2019

2 Comments

 
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For those of you who don’t know my son’s story, he was diagnosed with ulcerative colitis five years ago.

By ‘diagnosed,’ I mean as he lay on the clinic bed after his colonoscopy the gastroenterologist pronounced, “You have ulcerative colitis. I’ll put you on some medication,” then walked off.

That was it: no explanation of what this would entail for my poor son and no bedside manner whatsoever.

He took the medication and was immediately worse. Which is not surprising, since one of the side effects of Lialda is ulcerative colitis.
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I marched into the gastro office and demanded an appointment, using tears when all else failed. 
While my son – who had to drive two hours from university to get here – lay prone on a trestle bed in the gastro’s office, I told the man we weren’t interested in his medication anymore, and just wanted the prednisone to get the inflammation down. We’d done sufficient research to know the meds had horrible side effects. NO MORE UC MEDS!

He told us the disease had nothing to do with food but we knew differently. Shortly thereafter the prednisone didn’t work anymore, either.

I have since discovered that our gastro story is common among UC sufferers.

As you will know if you’ve been reading this blog, my son and I were now on the desperate search for a protocol that would improve his quality of life without the drastic problems that UC medication brings with it.
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It is an ongoing process and he is constantly fine-tuning his routine. But the one he’s been following over the past few months has kept him from having a flare for the longest time ever: 9 months.
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Christmas in Chicago, near my son's apartment.
Prayer and Fasting Answered

For the past five years – every Christmas since his diagnosis – he has flared either in November or, in 2017, two days before the Nativity of Our Lord. He dragged his skeletal frame to a couple of Midnight Masses, but it was painful for me to watch him struggle to participate in this important Christmas event.

The past two years he couldn’t even think about coming.

So, as Christmas was approaching this year, my prayer and fasting for his sake went into high gear!
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He arrived at our home on 22nd December, still doing well, but I wasn’t going to let up until he’d made it through the 25th and hopefully beyond.
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I took this photo during the carol singing, thanking God that my son could be with me this night!
When 24th came around, he was in good spirits and able to accompany me to Midnight Mass. (I’ve moved to Hilton Head Island, where ‘midnight’ starts at 10 p.m.!)

We arrived at 9:30 p.m. to the beautiful strains of a small orchestra playing carols before Mass began. As I sat next to him, my heart swelled with enormous gratitude to God. At the back of the church, on either side of the tabernacle, stood a huge lit fir tree, and a massive nativity scene rested at the foot of the altar steps. Red and white poinsettias added life to the scene, and I could feel God smiling down on us all.

Even though he doesn’t fully believe at present, my son recited all the prayers with me, held my hand during the Our Father and walked down the aisle for a blessing when I received the Eucharist.

I thanked him profusely and let him know that my Christmas was now complete.
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How I’d longed for this day!
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This is a very high quality hemp oil (it's no longer allowed to be called CBD oil)
His Current Protocol
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Many of you will want to know what my 26-year-old son is doing to maintain his current level of health. With the important caveat that this may not work for everyone, I outline his typical day below.

He is working crazy hours as a CPA with a big firm in Chicago, so his daily routine is pretty grueling. During the week he aims to get to bed between 8 and 9 p.m.

He wakes up between 4 – 4:30 a.m., goes to the bathroom (he’s sleeping through the night without needing to get up – hurray!) then returns to bed and rests his laptop on a pad on his knees and writes in his journal for 30 minutes.

Then he takes his dog for a 20 – 30-minute walk and feeds her when they get back. She (and our dogs, too) are on a raw food diet.
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For ‘breakfast’ he takes a teaspoonful of CBD (hemp) oil and two teaspoons of MCT oil, followed by a highly absorbable Turmeric/Curcumin Supplement with Boswellia Extract
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This turmeric/curcumin supplement is the highest recommended I could find, and together with boswellia is a powerful anti-inflammatory - and considered to have anti-cancer properties.
That is followed by 30 minutes in the gym doing strength/high intensity interval training to build muscle and keep his body strong to fight the disease through improved immunity.

At the gym he has a 12-minute sauna followed by a completely cold shower. This latter is from his research into the Wim Hof Method and its health benefits, particularly for strengthening the immune system.

When he first moved to Chicago, the cold really got to him and triggered his symptoms. This fall, as the temperatures started to drop, he wore less clothing than was comfortable to acclimatize his system to them.

He has found that this, plus the daily workouts and cold showers have helped to stave off a flare.

On his return home after the gym, he dresses and goes to work. His stomach is essentially empty so he doesn’t have to worry about sudden urgency on the way there or at the office or client.

Lunch is his first meal.

His diet consists of: beef, chicken or turkey; broccoli, carrots, brussels sprouts, asparagus, green beans and cauliflower. For something sweet he eats dark chocolate with no dairy, or sorbet. Since he can’t drink coffee, he finds that dark chocolate is great for waking him up in the afternoons when he starts to nod off.
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He absolutely cannot eat anything spicy.
He tries to eat dinner as early as possible but it’s usually not before 7 p.m. when he gets home. He could eat sooner at the office/client, but doesn’t want to need the bathroom.

Once or twice a month he’ll have a glass of red wine without ill effects.

Rinse and repeat.
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As already noted, to date he’s been able to stave off a flare. About once a month there’s blood in his stool (but still no diarrhea) or he feels a little ‘iffy.’ When that happens, he goes on a water fast for 24 hours or until dinner the next day. So far, so good.

​Fasting is a powerful anti-inflammatory. You can find a ton of information about this online.
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Chicago City sidewalk Christmas display
Coping at Christmas 
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This regime works well when he’s alone and in full control of his diet. It’s tougher in social situations which involve a lot of eating out.

He looks for simple items on the menu, such a steak, grilled chicken, broccoli and cauliflower. He even managed to eat carrots which had been smothered in butter (he is lactose intolerant) without ill effect!
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He ate sorbet for dessert when it was offered, and I found some coconut milk ice cream and coconut milk ices for him to snack on back home.
The Take-Away 

As the years go by, his self-discipline regarding food has sky-rocketed, spilling over into all other areas of his life.

He reads extensively and listens to such interesting podcasts that I’ve developed the habit of doing the same thing every morning when I get up. I find uplifting podcasts and YouTube videos, and highly recommend those by Bishop Robert Barron and Dr. Jordan Peterson. They set a positive tone for the rest of my day.

Whenever I feel down, I think of my son and how valiantly he is coping with his situation – and realize I have no right to be unhappy.  He doesn’t like his job, either, but is continuing to do well in it until he can find a better alternative.

I feel such pride in the fine young man he has become!

To cap it all, he and I are now in active dialogue about God and Christianity.

Things are good, and I pray they may continue.
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I wish you a very Happy New Year. I hope this helps you and that you, or anyone you know who has ulcerative colitis, might soon find relief.
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Hilton Head Christmas decorations wouldn't be complete without an alligator!
Subscribe to Hilary Walker Books, and get a free copy of Riding Out the Wager, the first book of The Father Michael Trilogy.
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Related Posts:

- Dog Therapy for my Son's Ulcerative Colitis


- St. Jude & Ulcerative Colitis

- Ulcerative Colitis: Stabat Mater Dolorosa

- Ulcerative Colitis: A Natural Approach

- One Man's Ulcerative Colitis Diet

- A Different Kind of Milk
2 Comments

Dog Therapy for My Son's Ulcerative Colitis

3/20/2018

1 Comment

 
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My son needed his dog, Fly, to help him get over this latest flare
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To be honest, I've avoided writing this post for several months.

Why?

Because while I was rejoicing over my son staying in remission, he was building up to another flare - which began a couple of days before Christmas.

Stress & More Stress

Looking back it's hardly surprising. In fact, I'm amazed it didn't happen sooner. He was under enormous stress, despite not eating any 'forbidden' foods, and as any UC sufferer knows, stress is a huge cause of flaring.

As an aside, I'd like to add that a new study suggests that our gut flora changes in winter and we have less of the good bacteria in our intestines then. This would account for many people flaring in winter, whereas they can keep their UC under control the rest of the year. (Of course, I can't find the Tweet that included the link to this study, but when I do, I'll share it!)

My son had just accepted a new job in Chicago, then driven fourteen hours straight to look for apartments in the Windy City. After a bitterly cold and busy week (the cold is no friend of UC, is it?) he found a place and signed a lease. He was now under obligation to pay a large amount of rent per month.

Next he had to buy a new Jeep. His old one needed a new catalytic converter but wasn't worth putting the money into.

More debt.

On top of that, the new vehicle developed problems that weren't being fixed properly by the selling garage. He now owed money for an SUV which might be a lemon.

He also knew that he wouldn't be able to take his dog, Fly (pictured above) with him for the first three months, as he'd be working 16 hour days plus Saturdays. That gave him no down time to spend with his beloved animal.

Thus, as I said, it is hardly surprising that he flared two days before the celebration of Our Lord's birth.

I was devastated. I had so hoped for a flare-free Christmas!!!

​But he had to start his new job, flare or no flare. I felt so sorry for him. Piling my truck high with his belongings, I drove to Chicago along the same route he'd set out on a few hours earlier. He would need to make many more stops than me along the way and needed the head start ....



















A Miserable Trip

It was snowing, sleeting and slamming down freezing rain all the way there - over fourteen hours. I still don't know how he managed to make it, as I was having a horrible trip!

But make it we did. Once in Chicago, between his bathroom trips, we unpacked our vehicles and got him settled into his 24th floor apartment.

Then I cooked him foods we knew he could tolerate and hunkered down to let him rest for the next few days before he had to go to work.

While he tried to sleep, I was on a big research gig and found studies on how Chinese medicine has been found to help with ulcerative colitis. Further investigation pulled up a Chinese practitioner not far from us. My son agreed to work with him.

In the meantime, he was also using the BEMER lent to us by a friend. He didn't feel it helped with the flare itself, but last year he went into a flare with what turned out to be a torn rotator cuff and the inflammation spread across his shoulders and down his arms.

He couldn't lift anything or write.

It eventually caused bursitis in both knees and he could only walk with the assistance of two canes if he kept his legs straight. It was HORRIBLE!

Once again, this time around he started his flare with a stiff shoulder. Yet it disappeared with the help of the BEMER. If not for that, my son would have gone through the same muscle misery as last time.

We visited the Chinese practitioner in Chicago. He performed acupuncture and gave my son a tincture called Irritease. (Use this link as other sites will only let you buy it if you are a practitioner.) 



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The Chinese Factor


​If you pull up studies, you'll find that anything used to help UC sufferers takes around eight weeks to work. My son's flares are usually for two months anyway, so it's hard to say whether the Irritease was helpful.

Yet now that my son has come out of his flare (more about that later) he's not taking it anymore because he doesn't want the opposite problem - constipation. To me that suggests that the tincture does help!

And here's another reason I think Chinese medicine is worth trying. 

After the first two weeks of diarrhea in January, the practitioner told my son to get a saline IV as he was severely dehydrated. He was so weak that I had to take a 45 minute Uber to his office and drive him home from work that evening. Thank Goodness I was in Chicago and able to do this!

Back at his apartment, I gave him some food then drove to the local hospital ER where they could see he needed help. As he lay on the bed being prepared for his IV, the nurse took a nose swab in a routine precaution to make sure he didn't have flu.
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Quell Fire - this stuff really works!
'We were horrified when the results came back: he had a temperature of over 102 F degrees and did indeed have flu!

But how were we going to get that temperature down? He can't take NSAIDs and Tylenol just rips up his intestines.

They wanted to keep him in hospital overnight 'for observation' but what good was that going to do? The doctor had already looked inside his mouth and declared him 'not to be dehydrated' - so we had zero confidence in her!

I drove my son home, and emailed the Chinese practitioner.

Watching my son writhe in agony that night, I prayed the Rosary over and over again, begging God not to let my son die. It was so awful!

The next morning his temperature was still high. I'd received an answer from Dr. Tim and rushed over to get another tincture, this time one against fever.

The concoction is called Quell Fire and I immediately started administering it to my son.

You'll remember he started at over 102 F degrees. Shortly after he took this tincture, his temperature began to drop and two days later it was 96 F degrees - below normal! What a result! He didn't need to take that anymore!

Throughout this period his new employer was very understanding. He had sick leave for two days, then was allowed to work remotely on day three. Mercifully the weekend came after this, giving him a better chance of resting and recuperating.

He was still flaring badly, and had a bad cough from the flu, but we were grateful that the fever had broken at least.

My son is a fighter. Sunday came and he had to drive himself and a colleague four hours to the location of a client in Michigan, where they would stay the week, come home o Friday, then return on Sunday.

One big mercy is that Depend underwear for men look like normal underpants and you can get them in three different colors. My son took a ton of those with him, and if asked why he wore them, would simply say "Why do laundry, if I don't have to?"

(When he was first diagnosed with UC he refused to wear these briefs, but understands the virtue of them now!)

During those weeks on the road he would have very little control over what he ate as he couldn't take food with him.

Miserable and worried, I flew back home to Maryland: there was nothing I could do for him anymore except pray and pray and pray. He is not a believer at present, so I'm very careful to keep my talks with God private.

The other thing I did was buy one dark chocolate bar after the other,  consuming large chunks of them whenever he was out of the room! I've read that chocolate increases one's level of serotonin and boy, did I need that!

PictureFly observes the Navy Pier looking out on Lake Michigan from her new home in Chicago.
Inching Forward

The first indication he was improving significantly came when he texted me that he was planning to go on a one-day ski trip with others in his apartment building. He explained that he now had more control over his bathroom trips.

Imagine my joy when, at the end of the day, he sent a group photo of the skiers - with him in it! And this, despite not being able to eat strictly in order to get over a flare.

This is why I believe the Irritease and acupuncture did help him. Previously he has gone back into an even worse flare if he wasn't completely disciplined about his food intake and we'd become used to two or three flares in a row, each worse than the one before.

Earlier I mentioned that it was hard on my son not having his beloved dog with him. Every night I sent a short 'good night' video of her.

Then came the day, six weeks after his flare began, when he asked if his dad and I could bring Fly to meet him somewhere on the route to Chicago. I knew he must be feeling a lot better if he judged himself able to take care of his dog.

That was two weeks ago. We took Fly with us and met our son in Toledo. Their reunion was so touching! Fly jumped up and down for joy at seeing her owner again.

​We went out to dinner at a restaurant our son had picked out. Imagine how happy I was when he rode with us, ate dinner and rode back with us - all without needing the bathroom!!!!!

The next morning we parted ways and that evening were sent the photo of Fly looking out of the window in her new abode.

A week later, on St. Patrick's Day I texted to ask if the river really is dyed green?

I was sent this photo:
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This showed me that, yes, the Chicago River is dyed green, but more importantly that my son is out and about with his dog - and that Fly is helping him enjoy life again.

Thank you, God, for this Easter gift!

I leave you with a link to this inspiring article:
Scaling New Heights with Ulcerative Colitis


Subscribe to Hilary Walker Books, and get a free copy of Riding Out the Wager, the first book of The Father Michael Trilogy.
​







​Related Articles:

- St. Jude & Ulcerative Colitis


- Ulcerative Colitis: Stabat Mater Dolorosa

- Ulcerative Colitis: A Natural Approach

- One Man's Ulcerative Colitis Diet

- A Different Kind of Milk

1 Comment

A Different Kind of Milk

7/13/2017

1 Comment

 
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​Sufferers of ulcerative colitis have very little to laugh about, so I thought I'd write a short humorous post about my son's latest find.

Since his UC diagnosis he's had to avoid milk from animals as part of the endless list of food items he has to leave out of his diet.

For a long time his go-to product was coconut milk, as he can't eat anything with almonds in it. (Did I already mention that his list of no-no foods and drinks is extremely long?)

He regularly scours the gluten-free supermarket sections and carefully checks the labels on any new products. As he says, if the list of ingredients is more than four or five he doesn't even bother to read it. For sure it'll include preservatives and other things he can't ingest.

So he was very excited to discover an alternative to coconut milk. Which, although perfectly fine for him, does have a distinctive taste which it lends to everything it's poured over.

But now Ripple Foods have made a delicious protein rich non-dairy milk out of - wait for it - PEAS!

It comes in 48 ounce containers and four flavors: Original, Unsweetened, Vanilla and Chocolate.

There are also 8 ounce cartons for kids, in Original, Vanilla and Chocolate.

Check them out and see if they might work for you.

Here's that link again: www.ripplefoods.com/products/

As for the humor - well, I think you can see where I'm heading with this. My son loves to tell his friends that he's brought his 'pee milk' with him and watch their faces!

Related Posts


- Ulcerative Colitis: Stabat Mater Dolorosa

- St. Jude & Ulcerative Colitis

- One Man's Ulcerative Colitis Diet

- Ulcerative Colitis: A Natural Approach

- Ulcerative Colitis Takes a Hike



The world is ready for a fictional hero with ulcerative colitis!

Riding Out the Devil is the first book in my trilogy about Jack Harper, a horse trainer with UC.

Download your FREE copy at ​Hilary Walker Books!


1 Comment

St. Jude & Ulcerative Colitis

12/16/2014

4 Comments

 
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WIth ulcerative colitis the road ahead looks really bleak
The National Shrine of St. Jude explains that: “During the Middle Ages, St. Jude was widely venerated, but perhaps because of the confusion between his name and that of Judas Iscariot, he slipped into temporary obscurity.”

It is indeed unfortunate that the names of two such opposite people should sound so similar.

But luckily St. Jude Thaddeus, one of the Twelve Apostles, whose last name means “the amiable or loving,” is now recognized as the Patron Saint of Hope and Impossible Causes. Or, as my prayer book calls him, “Help of the Hopeless.”

And rightly so!

My Son’s Hopeless Case

When my son was diagnosed with ulcerative colitis at age 21, I was as devastated as he was. The gastro-enterologist told him to stay on his normal diet, and prescribed medication that made him a thousand times worse. One of the side effects of that drug was - ulcerative colitis! So how could it have helped?

My son lost 40 lbs in a couple of weeks. He was trying to do college work while writhing in agony, unable to ingest anything without it going straight through him. That included water, and he was becoming dangerously dehydrated.

Online research took me to numerous forums of sufferers of the disease. Their story was always the same: they’d find something that helped for a while but it never gave lasting relief.

My son was going to be stuck with this horrible disease for the rest of his life. Nobody knew what caused it, and we were told there was no cure.

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When all else fails, God is waiting to help
St. Jude, Please Intercede for My Son!

I was already praying daily to the Infant of Prague on my son’s behalf, and now began praying to St. Jude for his intercession.

During this time of nothing but bad news about ulcerative colitis, I knew I had to be steadfast in my resolve to trust in God’s help.

The Miracles Begin

My husband then said: “You use natural remedies on the horses with great success. Why don’t you look that up for ulcerative colitis?”

I suppose I’d been so beaten down by the sad testimonies of sufferers, that it hadn’t occurred to me there might be a natural remedy for it!

Thanks to St. Jude’s intercession, the Holy Spirit guided me through the maze of information on the internet to the one man who could help my son. He was the only person to state with confidence: ‘this disease can be reversed.’

To back up his claim he offers a detailed protocol, available to download for free, which explains how to overcome UC and other bowel disorders naturally, safely and effectively. He has a medical practice in Cincinnati and you can also have telephone consultations with him. But the protocol could be used without his help, if you prefer.

But my son wanted to take medication, even though I explained that he'd be on meds for the rest of his life.

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Having blind faith is so difficult - but so necessary!
My Son Gets Worse


Then he called from college to say he was so ill he could hardly stand up with the pain, and I told him to stop taking the drugs immediately. Then I bullied the gastroenterologist into seeing him THAT DAY!

My son was in such agony he had to lie down in the consulting room while I told the ‘specialist’ that we were going to find a better treatment.

Initially resistant to the idea of taking the natural route, my son was now on my side, after suffering the debilitating effects of the ‘medication.’ We all agreed that he should take the steroids to reduce the inflammation in his colon. But after that, no more drugs, thank you!

I had downloaded and read the protocol, and it made a great deal of sense to me. It explained the huge part diet plays in bowel problems and how certain foods must be avoided in the beginning.

When I told the gastro-enterologist that my son was probably allergic and/or intolerant to certain foods, he laughed at me. “My wife is a food allergist. If this disease were related to food allergies, we could make a fortune sending my patients to her!”

Clearly we no longer needed to waste time in his office, and left with the steroid prescription.

My son and I went to lunch together, during which he ate a couple of pieces of lettuce. Tears were streaming down my face: he was so thin and haggard, and going through such pain and misery.

He said: “Don’t cry, Mum, it’s not as if I’m dying,” then dashed off to the bathroom.

I cried all the more. And prayed all the harder that we could get him through this awful time.

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Hope, pray and don't worry
St. Jude Comes Through  

That experience with the gastroenterologist actually saved us a lot of valuable time. Rather than lurch from one bad drug to another, as so many other sufferers do, we stopped after the first one and went straight to the protocol.

The prednisone did reduce inflammation of my son's colon, and with it, his unbearable pain. At the same time he started taking the probiotics and prebiotics and other good enzymes he needed, as well as restricting his diet to those foods which the protocol said were safe for someone in his condition.

He began to improve steadily.

Around this time I was in a café, talking to a friend about the situation, when the lady sitting next to me said that she had ulcerative colitis. But with a careful diet she’d not had any symptoms for over thirty years!

Through the intercession of St. Jude, God was sending me the signs and the help I needed to assist my son.

The Miracles Continue


My son’s improved condition encouraged us to consult with the physician who created the protocol. He organized a food allergy test with a separate company, which showed that my son is allergic to over thirty different foods. (One day I shall go back to that gastroenterologist with this information!)

This doesn’t mean that he’ll never be able to eat those foods, just that he is currently sensitive to them. Soon he can re-introduce them slowly over time and see if he’s able to add them to his diet once more.

Now, if he eats the ‘wrong’ thing, he doesn’t go into a full-blown flare-up that lasts weeks. He simply feels a little discomfort, which soon passes. His colon is finally healing.

What a turnaround from a year ago, when his (then) gastroenterologist tersely announced that he has ulcerative colitis and walked off and left us to deal with the awful news.

Thanks to St. Jude's intercession, my son is almost cured: St. Jude truly is the Saint of Hopeless Causes!

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With God all things are possible


For information on the protocol my son followed, go to this website:

http://www.drdahlman.com/

Dr. Dahlman is very good about answering any questions you may have by email. He has a medical practice in Cincinnati, and has a 95% success rate in curing diseases of the bowel.

Related Articles

- Ulcerative Colitis: A Natural Approach

- One Man's Ulcerative Colitis Diet

- Ulcerative Colitis: Stabat Mater Dolorosa


- A Different Kind of Milk

- Ulcerative Colitis Takes a Hike


The world is ready for a fictional hero with ulcerative colitis!

Riding Out the Devil is the first book in my trilogy about Jack Harper, a horse trainer with UC.

Download your FREE copy at ​Hilary Walker Books!



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    Hilary Walker

    A fanatic horse rider and writer of Christian Inspirational Fiction, who's beginning to understand that making it to Heaven is a tad more important than winning at horse shows.

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